Skip to main content

Patient-Centered Decision Support for Proactive Care

Mid adult black female using a medical device in a domestic dining room. Measuring blood pressure at home.
Piloting FHIR interoperability standards to enable real-time care decisions for postpartum hypertension
  • Client
    Office of the National Coordinator for Health Information Technology, U.S. Department of Health and Human Services
  • Dates
    2025 – 2027

Problem

Delays in health data sharing can put patient safety and health at risk.

Health care delivery increasingly depends on timely, data‑driven digital health tools to ensure safe, high‑quality care across diverse clinical scenarios. Yet many digital health interventions are limited by delays in how electronic health records (EHRs) exchange critical information with third‑party applications. When systems rely on periodic polling or manual queries, clinicians may not receive important event updates quickly enough to act, creating risks for patients whose conditions require prompt attention. These challenges are especially evident in scenarios such as postpartum monitoring for hypertensive disorders of pregnancy, where delays in responding to elevated blood pressure readings can jeopardize maternal health and safety.

HL7® FHIR® Subscriptions offer a standards‑based mechanism for real‑time event notifications, enabling EHRs to automatically push updates when relevant clinical changes occur. However, adoption has been limited by technical, operational, and workflow integration challenges.

To address this need, the Office of the National Coordinator for Health Information Technology (ONC) sought a real‑world pilot demonstrating the value and feasibility of FHIR Subscriptions for enhancing digital health applications, with postpartum hypertension as the initial use case.

Solution

NORC and partners are piloting FHIR Subscriptions for real-time clinical decision support, with postpartum hypertension as the use case.

NORC, in partnership with Elimu Informatics and Emory Healthcare, is enhancing a Hypertensive Disorders of Pregnancy Monitoring (HDPM) app by integrating FHIR Subscriptions and piloting its use in clinical settings. The app enables timely notifications of relevant clinical events, eliminating the need for manual screening and frequent polling.

The pilot enrolls postpartum patients at Emory Healthcare, with clinicians and patients actively engaged in workflow development and usability testing. The solution is being developed and tested through a collaborative, stakeholder-driven process that includes requirements gathering, technical design, integration, and iterative refinement.

We are also conducting a mixed-methods evaluation to assess feasibility, effectiveness, and scalability. This evaluation will generate actionable insights for broader adoption of FHIR Subscriptions across diverse health care settings.

Result

This pilot will generate evidence on the feasibility, effectiveness, and pathways to broader adoption for FHIR Subscriptions.

This project aims to evaluate how effectively FHIR Subscriptions enable real-time, standards-based data exchange between EHRs and third-party applications for patient-centered clinical decision support. Measurable outcomes include faster patient identification for pilot enrollment, timelier clinical interventions, reduced clinician burden, and enhanced patient engagement.

The evaluation will provide evidence on technical feasibility, workflow integration, and user experience, informing improvements to the FHIR Subscriptions specification and supporting its adoption across the health IT industry. Findings will be disseminated to standards developers, app developers, health systems, researchers, and policymakers through reports, presentations, and open-source tools.

Ultimately, this work supports a health system capable of securely and safely exchanging data between apps and EHRs to deliver more responsive, patient-centered care.

Learn More

For more information about the Patient-Centered Decision Support for Proactive Care project, visit the Office of the National Coordinator for Health Information Technology (ONC) website.

Funding Details

This project is supported by the Office of the National Coordinator for Health Information Technology (ONC) of the U.S. Department of Health and Human Services (HHS) under Grant Award Number 90AX0044/01-00, Powering Proactive Care: FHIR Subscriptions as the Foundation for Time-Sensitive Patient-Centered Decision Support; award amount $999,227. This information or content and conclusions are those of the author and should not be construed as the official position or policy of, nor should any endorsements be inferred by ONC, HHS, or the U.S. Government.

Project Leads

“Our work will provide critical evidence on feasibility of using FHIR subscriptions to enable real-time standards-based data exchange between EHRs and third-party applications, paving the way for broader adoption and a more connected, responsive health IT ecosystem.”

Vice President & Principal Investigator

“Our work will provide critical evidence on feasibility of using FHIR subscriptions to enable real-time standards-based data exchange between EHRs and third-party applications, paving the way for broader adoption and a more connected, responsive health IT ecosystem.”

Explore NORC Health Projects

Clinical Decision Support Innovation Collaborative

Advancing patient-centered clinical decision support through innovation, real-world testing, and collaboration

Client:

Agency for Healthcare Research and Quality

Health Information Exchange Among Clinical Laboratories

A landscape assessment of how the electronic exchange of laboratory data has evolved since 2012

Client:

Office of the National Coordinator for Health Information Technology (ONC)