Since June 2018, NORC has been providing the Patient-Centered Outcomes Research Institute (PCORI) with analytic and operational support for a variety of stakeholder meetings. They include a meeting of patient, caregiver, and consumer stakeholders; a series of standing meetings with a group of payers that serve public and privately insured populations throughout the U.S.; and a meeting with researchers and patient advocates on the topic of suicide prevention. At each meeting, PCORI provided stakeholders with an update on PCORI’s activities, products and study findings to date, and sought stakeholder input on PCORI’s research agenda and products. To date, NORC has provided support for five meetings:
- August 1, 2018: Patient, Caregiver, and Consumer Stakeholder Meeting
- April 4, 2019: Payer Forum
- July 18, 2019: Payer Forum
- November 13-14, 2019: Payer Forum
- December 17-18, 2019: Stakeholder Workshop on Suicide Prevention
For each meeting, NORC was primarily responsible for observing each meeting, taking detailed, transcript style notes, and producing two summaries: one for internal use, and one for distribution to meeting participants. Additionally, for the August 1st meeting, NORC prepared a background paper on how value is defined in the health care literature and among attendee organizations. PCORI asked NORC to think about how the current conversation in the literature and among attendees fits within PCORI’s mission and activities, and how PCORI might guide the discussion during the breakout session. Therefore, in order to better understand the landscape of frameworks and understandings of “value” in health care, NORC performed a review of peer-reviewed, grey, and lay literature available through PubMed and Google using search terms including “value in health care”, “value-based health care”, “patient-centered value framework”, and “value framework”, among others.
In addition, NORC assists PCORI by gathering information about attendees and their organizations by reviewing websites and other publically available materials, including their areas of interest or investment in research, types of organizations and membership, and partnerships.
NORC expects to provide PCOR support for four more meetings during the contract period.