2009 - 2010 National Survey of Children with Special Health Care Needs

Sponsored by the Maternal and Child Health Bureau and coordinated through the National Center for Health Statistics, the National Survey of Children with Special Health Care Needs (NS-CSHCN) is conducted by NORC interviewers in a total of six languages and provides a wide range of data on the health and health care needs of special needs children.  The NS-CSHCN is designed to produce prevalence estimates of children with special health care needs (CSHCN) using a standard battery of screening questions, to describe the types of services that these children need and use, and to assess possible areas of improvement in the system of care for CSHCN. The NS-CSHCN collects information on special needs children including:

  • Health and functional status
  • Health care access, utilization, and unmet needs
  • Health care coordination
  • Family-centered care and shared decision making
  • Health transition issues
  • Developmental screening
  • Health insurance coverage and adequacy
  • Impact of special health care needs on the family
  • Selected demographic characteristics

The NS-CSHCN is administered using the State and Local Area Integrated Telephone Surveys (SLAITS) model, a telephone survey mechanism designed to benefit from the extensive sampling investment made by the National Immunization Survey.  In this manner, SLAITS surveys, such as the NS-CSHCN, enjoy the methodological advantages of being based on a large Random Digit Dial (RDD) sample design without incurring the cost of identifying known households.  For this survey NORC collects approximately 750 interviews in each state, Washington, D.C., and the U.S. Virgin Islands – a total of 39,000 interviews overall.  The field period for this survey ended in March 2011.

Resources

2009-2010 National Survey of Children with Special Health Care Needs Data Setsextlink